Friday, 7 February 2014

'Normal People' Illnesses

In the spoonie comunity we are so used to the daily struggles our bodies throw at us, but even common colds and viruses can defeat us. We call these 'normal people' illnesses as they are common and most people can carry on as normal with them. But for us with very low or overactive immune systems they can seriously harm our bodies.

At the moment I am battling what started out as a UTI, but since I have been taken off the drugs that calm down my immune system it has developed into a full blown Kidney infection. Things like this make it very hard for me to stay sparkly and positive. It's like one big white blood cell party where they're all throwing up and taking drugs inside my body right now!

The hardest thing is doing your day to day activities, my life is already adapted around Lupus so much but this week I've found juggling university, organising two events and my personal life even harder. I've made it to 2 of my 6 classes this week and done most of my even work from my bed, luckily Az has been coming over to see me but we haven't gone out all week.

This post sounds quite depressing when I really didn't mean it to seem like that. More than anything I just needed to get all of this out so I could focus on the good things. We've eaten some lovely food and I've had some lovely moments this week with friends and family. I've got to read more blogs and catch up on my favourite TV shows.

I often think that my illness flaring is my body's way of telling me I need to slow down, but I also know that I can't stop because of it. One of my New Years resolutions was to be kinder to my body and I'm really working on that, I know my limits and don't push them too much. I'm also feeling more inspired because of friends and my wonderful boyfriend, taking time out really helps.

Another very important thing for me is self care, doing things that make me happy, even if it means wearing lippy whilst lying in bed or wearing a onesie. Self care is basically anything that reminds you how special you are and makes you feel good. Whether it be putting glitter on your nails, writing a poem, watching your favourite TV show or eating ice cream do what's good for you.


  1. Get better soon Rachel. I know how hard it is to struggle and to push on, and how you sometimes need to get the negative out to feel better about the positive, and in the end this was a positive post. You ARE a warrior, even if you're lying in bed in a onesie and some red lippy, even warriors need to rest :) xx

  2. Also I had never known the spoon theory before, and it explains everything perfectly. Sometimes why on some days I find it so hard to even get up to go to the bathroom and how that trip tires me out for the rest of the day

  3. I love the third picture, we should all remember to take a step back when we're at our peaks of health and appreciate it. Thanks for sharing this meaningful post x


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